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Save A Child's Heart Kawasaki Disease

Kawasaki Disease is an illness that involves the skin, mouth, and lymph nodes, and typically affects children who are under the age of 5. The cause of Kawasaki Disease is unknown, but if the symptoms are recognized early, kids with the disease can fully recover within a few days. If it goes untreated, it can lead to serious complications that can involve the heart.

Kawasaki disease occurs in 19 out of every 100,000 kids in the United States. It is most common among children of Japanese and Korean descent, but the illness can affect all ethnic groups.

This illness can't be prevented, but you can help your child by learning the telltale symptoms and signs, which typically include a fever that lasts for at least 5 days, red eyes, a body rash and severely-chapped lips and mouth. If your child shows these symptoms it's a good idea to call the doctor.

Signs and Symptoms of Kawasaki Disease

The symptoms of Kawasaki Disease typically appear in phases.

The first phase, which can last for up to 2 weeks, usually involves a persistent fever that is higher than 104 degrees Fahrenheit (39 degrees Celsius), and lasts for at least 5 days. The other symptoms that typically develop include:

  • severe redness in the eyes
  • a rash on the child's stomach, chest, and genitals
  • red, dry, cracked lips
  • swollen tongue with a white coating and big red bumps
  • sore, irritated throat
  • swollen palms of the hands and soles of the feet with a purple-red color
  • swollen lymph nodes

During the second phase of the illness, which usually begins within two weeks of when the fever first begins, the skin on the child's hands and feet may begin to peel in large pieces. The child may also experience joint pain, diarrhea, vomiting, or abdominal pain.

Complications of Kawasaki Disease

Doctors can manage the symptoms of Kawasaki disease if they catch it early. The symptoms typically disappear within just two days of when treatment begins. Usually, if Kawasaki disease is treated within 10 days of when the first symptoms begin, no heart problems develop.

But if the illness goes untreated (time period can vary, but likely for 10-14 days and sooner in young infants), it can lead to more serious complications that involve the child's heart. Kawasaki disease can lead to vasculitis, which is an inflammation of the blood vessels. This can be particularly dangerous because it can affect the coronary arteries, which supply blood to the heart.

In addition to the coronary arteries, the heart muscle, lining, valves, or the outer membrane that surrounds the heart can become inflamed. Arrhythmias (changes in the normal pattern of the heartbeat) or abnormal functioning of some heart valves can also occur.

Diagnosing Kawasaki Disease

There is no one test to detect Kawasaki disease, so a doctor typically diagnoses it by evaluating the child's symptoms and ruling out other conditions.

Typically, a child who is diagnosed with this illness will have a fever lasting 5 or more days and at least 4 of the following symptoms:

  • redness in both eyes
  • changes around the lips, tongue, or mouth
  • changes in the fingers and toes, such as swelling, discoloration, or peeling
  • a rash in the trunk or genital area
  • a large swollen lymph node in the neck
  • red, swollen palms of hands and soles of feet

If Kawasaki disease is suspected, a doctor may order tests to monitor the child's heart function, which can include an echocardiogram, and other tests of heart function. A doctor may also take blood and urine samples to rule out other conditions, such as scarlet fever, measles, Rocky Mountain Spotted Fever, Stevens-Johnson syndrome, juvenile rheumatoid arthritis, and an allergic drug reaction.

Treating Kawasaki Disease

Treatment should begin as soon as possible, ideally within 10 days of when the fever first begins. Usually, a child is treated with intravenous doses of gamma globulin (purified antibodies), an ingredient of blood that helps the child's body fight off infection. The child may also be given a high-dose of aspirin to reduce the risk of heart problems.

 
Vincent Nicky: April 13, 2000 at 5 years old
As I read each and every family's story, the horror of Kawasaki disease is relived. My heart is filled with prayers for all the precious children and their families. Our Kawasaki nightmare came to my precious little boy Nicky, age 5 April 13 2000. Daily trips to the doctors office, the emergency room, interns, misdiagnosed as a virus, Stevens Dx, epsteins-barrs strep scarlet fever. I watched a healthy, active little boy deteriorate to 104-105 high fevers, rash, swollen face, neck, edema hands, feet, swollen tongue red strawberry, pain, lots of pain, peeling fingers, feet. Nicky had every symptom of KD, yet only strep test were done. I demanded hospitalization, I was ignored "he has a virus he will get over it we were told by the same pediatrician stop calling, I was disturbing them. I put Nicky on the prayer list of every church I can call. The Catholic Church lady gave me the name of her brother-in-law Dr. Gerba in L.I. Somehow my husband a NYPD police lt. got nick hospitalized on the 8th day. Still the infection control specialist said no KD, after all the signs were there, the pediatricians who said don’t call the office anymore showed up. That was when my nightmare became worse. He was going to discharge my child. As a respiratory therapist but as a mother I refused. I knew my child was Dying. I fired him on the spot. I called Dr. Gerba’s office. I spoke to Dr. Inguagiato and he took my case thank god, because when Dr. Gerba saw Nicky time was running out. Dr. Gerba said Kawasaki Disease and treatment of ivgg was administered. Nicky’s artery had some signs of opening so we were doing aspirins and echoes for 6 months when it closed up thank god. I was never a religious person but prayed to God and a mothers love, my stubborn will saved this child. I am currently looking to find Doctors in the USA that are experts in KD. Interns, ER staff, pediatricians of all people should know signs and symptoms of this monster Disease. I am just a mommy who wishes to get word to the medical community, lay community parents, schools about KD. Knowledge is crucial. I never heard of Kawasaki in my life, it has changed our lives forever. This all happened in Easter 2000, god sent angels to help us when the experts were very indifferent, cold and labels us, the parents as "hysterical". Kawasaki is something for us parents to get " hysterical" about. Hysterical about doctors to diagnose our precious little ones properly, because time is crucial. Nicky our miracle sweetheart is 6 years now and he wishes to tell parents that he loves all of the children and he wants to be a doctor who will love children. God bless you all.


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